What Ben Still Has Ahead

There are many important appointments approaching Michelle and Paul which will give them more and more answers about Ben's health and condition. Friday morning Ben has a follow-up doctors appointment at the CF clinic in Westchester. We are looking forward to this appointment to see what the doctors have to say about Ben's health after being released out of the hospital for 2 weeks. Also, we are waiting on the results for his genetic test which will come in the next couple of weeks. This test will analyze the severity of his disease and will be able to tell what specific genes are effected. The genetic carrier test detects if the patient carriers one or more mutation of the CF gene and how many copies of each mutation.


Today Ben was running around, chasing Ty and cousin Luke as Michelle noticed that Ben has a hard time keeping up with them. This is mostly because Ben is a year behind them, but also Ben seems to get tired more easily. Ty and Luke were racing down a hill toward the beach as Ben quickly followed, hating to be left behind. Ben could only make it down the hill and then stopped. Michelle had to walk down to bring him back up.


The thing that worries Michelle and Paul the most about Ben's disease is the unknowns about what the future holds. Ben could very well thrive and live a healthier life than any one without CF. On the other hand, Ben may be the young teenager who is always behind in sports and has difficulty keeping up with his peers. Michelle and Paul have learned quickly that they have no other choice than to take one day at a time, trusting fully in God's plan for Ben's life. We pray that Ben will be free of any dangerous bacteria, that he will take full ownership of his disease, and that he will trust God with his future.


Philippians 3:7-8 - But whatever was to my profit I now consider loss for the sake of Christ. What is more, I consider everything a loss compared to the surpassing greatness of knowing Christ Jesus my Lord, for whose sake I have lost all things.


1 Thessalonians 5:16 - Be joyful always; pray continually; give thanks in all circumstances, for this is God's will for you in Christ Jesus.

Ben and I dancing to the new Carrie Underwood CD as he does his treatment.