Friday, July 18, 2008

Home!

Uncle Tim and Aunt Krista made a special welcoming sign for Ben when he arrived. Since Ben has been home his new vest arrived. Ben tried it this morning and it is a good option for CPT (chest physical therapy) because Ben can still use his arms. With the "pat pats" Ben has to sit still longer (which for a 2 year old is not possible!) but with the vest he can play with toys at the same time. Ben's little body is still adjusting to CF treatment such as the pancreatic enzymes. He has a very sore rash on his bottom which is either from the enzymes or the antibiotics. Ben is on oral antibiotics to continue his treatment from the hospital. Ben loves being home, but his body has gone through so much these past weeks that he is still worn out and is not 100%.

Ben likes to sing this song:

You are my strength when I am weak
You are the treasure that I seek
You are my all in all
Seeking You as a precious jewel
Lord, to give up I'd be a fool
You are my all in all
Taking my sin, my cross, my shame
Rising up again I bless Your name
You are my all in all
When I fall down You pick me up
When I am dry You fill my cup
You are my all in all
Jesus, Lamb of God
Worthy is Your name
Jesus, Lamb of God
Worthy is Your name
You are my strength when I am weak
You are the treasure that I seek
You are my all in all
Seeking You as a precious jewel
Lord, to give up I'd be a fool
You are my all in all

Stubborn little Ben would not take this picture ... but a little bribing for a piece of gum worked!

My dad and I made a surprise visit to see Ben. I have never seen a little kid so passionate about motorcycles! When we drove past the house Ben was standing outside and started to wave both arms frantically. He couldn't stand it! Haha...then Papa drove right past him and I will never forget how cute Ben was. He just stood their raising one hand in the air in complete amazement.


Please fully enjoy this picture like I do! A rough motorcyclist and his lobster bar t-shirt!

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