Tuesday, July 22, 2008

Trouble!

After everything that has happened, it's easy to see that Ben is still Ben ... always taking things from his brothers, always on the go, always knowing what he wants and when he wants it, and always up to something he's not suppose to do ... and cystic fibrosis has not stopped him from getting back to the normal 2 year old behaviors. Even though Ben seems to always be getting into same kind of trouble, he has such a sweet heart behind all his energy and excitement. Great-grandpa Bollier was at our house for a couple of weeks and it was so cute to see Ben walk over to his chair and give him a big hug when no one else was around him!

Ben may seem to be back to his normal lifestyle (besides his treatments and pancreatic enzymes), but it's Michelle and Paul who carry the heavy load of caring for Ben's disease at this point in his life. Michelle and Paul are learning the balance between take precautions to avoid Ben from catching any sickness and also allowing him to live out his life to the fullest. For Ben's remaining lifetime, there is a continuous prayer request that he does not get the serious bacteria, Pseudomonas aeruginosa. About 60% of people with cystic fibrosis get respiratory infections because of this bacterial. Pseudomonas settles in the thick mucous trapped in his lungs which is very hard to get rid of. Respiratory failure from these infections is what ultimately kills CF patients.

BUT ... We believe in a POWERFUL God! We pray that Ben will be free of this bacterial!



Since he has been home from the hospital, he has been riding his bike all over town! Before he was diagnosed, he didn't seem too interested in his bike, but now he just wants to take off!

Proverbs 21:30 - There is no wisdom, no insight, no plan that can succeed against the Lord.

Isaiah 25:1 and 9 - O Lord, you are my God; I will exalt you and praise your name, for in perfect faithfulness you have done marvelous things, things planned long ago. Surely this is our God; we trusted in him, and he saved us. This is the Lord, we trusted in him; let us rejoice and be glad in his salvation.

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