The Doctor informed us Ben will possibly be staying in the hospital longer than two weeks (visitors always welcome!). So basically, we need to get really comfortable! This news is obviously good and bad. Good - Over the next couple of weeks the CF staff will monitor his digestive and respiratory system very closely and he will continue to get the attention he needs. Ben has already gained 2 pounds since he has been at Children's. The pancreatic enzymes seem to help absorb his nutrients but at the same time he has been a little irritable. I personally think his stomach is a little upset, trying to adjust to the enzymes he has never had. Also, he receives respiratory therapy four times a day which consists of nebulizer treatment and CPT (chest physical therapy). He loves CPT as it helps relax him because it's basically a nice back massage. The benefits of CPT is to break up all the mucous and drainage that sticks to the walls of his lungs. Bad - Ben will remain in isolation and Paul and Michelle will continue to live out of their suitcase. Another "little miracle within the storm" is how God has provided a place for Paul and Michelle to call "home." For the past four days, a generous Alumni from Wheaton Academy has allowed the family to stay at his condo 10 minutes from the hospital. It is located right along the lakeshore, two block from Michigan Ave (which is dangerous, especially for me!), and in the heart of the city. Currently, for the next week Paul and Michelle are relocating to Nate Frank's apartment in Wrigleyville! (Cubs game anyone?!?!?!) God knows how to take care of our needs! Meanwhile, it continues to be a struggle with balancing time with Ty, Ben, and Caleb. Michelle is still nursing Caleb and has to travel back and forth on a regular basis ... she is in high demand!It has been a 1 1/2 week in the hospital, and now the full affects are kicking in ... it's been draining, exhausting, and a test of faith.
A close friend gave me this verse: Nahum 1:7 - The Lord is good, a refuge in times of trouble. He cares for those who trust in him.
We may be tired and weary ... buts we TRUST in a God who has NO LIMITS. He is the provider, the caregiver, the Doctor, the healer, the comforter, the support, the helping hand, a friend, a Father, the reason we breath ... he is EVERYTHING we need.
Mama's little boy!
4 comments:
Psalm 91 begins "He who dwells in the shelter of the Most High, will rest in the shadow of the Almighty. I will say of the Lord, He is my refuge and my fortress, my God, in whom I trust." and then continues in verses 15-16 "He will call upon me and I will answer him; I will be with him in trouble. I will deliver him and honor him. With long life will I satisfy him and show him my salvation." As you have made God your refuge through all of this, be assured that He will answer your call. This is my prayer for you today, verse 16 - specifically for Ben's salvation! Love you.
We are thinking of all of you and praying for Ben constantly. Claire is very worried about her cousin and is looking forward to the next time Ben will be able to play with her. We love you all!
My family and our new church family in Spokane, Washington are praying for healing for Ben and for strength and patience for your family.
Blessings in Christ
Sheryl
Thanks for posting this blog! We have been in lots of prayer for little Ben and are glad he's getting the attention he needs. Post any specific needs or requests as well, we'd love to hear how we can help--
The Martin Family
(Steve, Amy, Isaac & Noah)
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