Thursday, August 20, 2009
Insurance issues
Friday, August 14, 2009
New House and Bad News
The boys in the moving truck as they leave their old home.
They are really enjoying their new home.
Their address is 0N556 Herrick Drive Wheaton, IL 60187.
It has been an intense 2 weeks for the Fergusons. They arrived home from New Hampshire with one week to pack up their house. Then they closed on both homes on the same day which was crazy to say the least. The day they were moving, they received a call saying Ben had cultured Pseudomonas aeruginosa. This is the "bad" bacteria in the CF world due to being the most common cause of lung infections. Eventually it may colonize in Ben's lungs and be responsible for damage to lung tissue as the disease progresses. There was a drug created in 1997 called TOBI, the first aerosolized antibiotic designed for CF, that is a great weapon against Pseudomonas. Ben has been on TOBI for the past 2 weeks and will continue for another 2 weeks. On top of Ben's regular chest therapy and pulmonzyme, TOBI is a twice a day inhaled antibiotic that takes about 20 min each time. Its hard for a 3 year old to sit with stuff strapped to his face and body for 45 mins twice a day. . . everyday. So far Ben has been responding positively to TOBI and his symptoms are improving. So the plan is for Ben to be off TOBI for a month then back on for another month. If his symptoms worsen then he may have to be admitted to Children's Memorial Hospital for IV antibiotics.
Please pray for Ben to be rid of all Pseudomonas in his lungs and that God would protect him from it in the future. Thank you for your prayer support of Ben and our family! We are very grateful!
