Ben wakes up by 6am each morning and is quickly followed by Caleb. Either Paul or Michelle take them two downstairs for "vest and mask" time (Chest Therapy and Pulmozyme Nebulizer treatment). Ben wants to watch "Oh no You never let go," which is a DVD of Christian songs from Grandma Ferguson (Lannie). Ben has been watching this video 3 times a day for the past 2 weeks. Slightly obsessive? I think so! But it's a good obsession and the whole family enjoys it! Ben's favorite part of the song is, "Through the calm and through the storm. Oh no, you never let go. Lord, you never let go of me." (When I go home this weekend, I'll get a video of it.) What an amazing lesson for Ben to learn at a young age. We are so thankful that Ben is filling his soul with God's truth. Please continue to pray for health for Ben's body as well as salvation for his soul.
Ben seems to be doing well. Michelle and Paul are still continuing to do his vest treatments 3 times a day (which is increased from twice a day) and are closely watching him as he still has an increase of mucus. Michelle said she thinks it was less yesterday but they are still going to see how it is today and then talk with the Nurse Practitioner on Monday. If his mucus has not decreased, then they will take him to see Dr. Chung on Tuesday to make sure nothing more is going on. Ben doesn't seem to have anyother symptoms of lung infection, so we think it is just taking him a while to get over this cold. Michelle also said she never expected him to struggle through a cold so much now that we have ways to help him. But through it all we are reminded how important it is to protect Ben from exposure to illnesses and most importantly to bathe him in prayer. We are SO grateful for your prayers. James 5:16 says, "The prayer of a righteous man is powerful and effective."
Last weekend my dad and Michelle went to a Cystic Fibrosis Foundation Fundraiser called the Breath of Life Gala. They gave me a full report, stating it was a very nice evening at the Ritz Carlton in Chicago. They met some wonderful people from the CFF as well as the Foundation's President Robert Beall. Dr. Beall spoke about the great strides in the care and life of CF patients. He shared the exciting advances that have been made and are in the process of being made. These include protein repair drugs that would address the root problem of CF. It was exciting for my dad and Michelle to hear about all the work the CFF is doing for the impovement of CF patient's lives and the extremely confidence that a cure is in grasp.
WOW! How cool to think about the possibilities God has in store for Ben! He could be one of the first to experience these life saving strides for a cure of cystic fibrosis!
"Not our will, but Yours be done."
Last week Ben visited the dentist. His teeth are healthy and he has no cavities. This is good news because CF patients tend to have more problems with their teeth. 
